Arthritis? Sjorgren's syndrome?
June 2, 2011 by admin
Filed under Scleroderma
My mom is 47 years old and thinks she has arthritris. She recently went to the doctor and had blood-work done. The test was called "ANA Scrn+AutoImm Pnl" When she was done, they gave her a paper that was typed up in doctor-language. The number for something called "SSA Ab" that she got was "H 100", Next to that, it says, "SSA antibodies may be detected in cases of Sjorgren's syndrome. They may also be detected in cases of congenital heart block, neonatal lupus, and some patients with systemic lupus erythematosus".
The test after that was called "RNP Ab". The number she got was "H 113" and next to that, it says, "RNP antibodies are seen in mixed connective tissue disease. They can also be present in other autoimmune diseases such as SLE, Sjorgren's syndrome, scleroderma, an polymyositis".
Neither of us know what ANY of this means... Her doctor told her that numbers received higher than 100 are considered high.
She had the testing done three days ago and the doctor told her that he's referring her to a rheumatologist, which we don't really know what that is either. She would have asked the doctor I'm sure, but the office has been closed for the past few days.
She says that sometimes it hurts to get started walking and she has burning, weak muscles.
Does anyone know what this could be or what the paper from the doctor means?
What exactly is systemic lupus erythematosus? Sjorgen's syndrome? Scleroderma? Polymyositis?
I looked this stuff up, but it was all written in a way that I couldn't understand... just like the stupid paper the doctor gave to my mother. Please help?!
My dad was recently diagnosed with Rheumatoid Arthritis. What should we expect?
His blood work came back positive, he's getting a second test done but we're pretty sure he has it. I know what Rheumatoid Arthritis is but I don't know what really happens to the body other than the splaying of hands. Can somebody shed some light? We're really nervous.
~~Please help diagnose me!!! extensive bloodwork with no abnormal results…SO FRUSTRATING!!!~~?
January 9, 2011 by admin
Filed under Scleroderma
I have MANY symptoms pointing to something systemic, connective tissue involved or auto immune... especially similar to lupus, mixed connective tissue disease, scleroderma, dermomysotitis, sarcoidosis, lyme disease,lymphoma, skin cancer etc.........all blood tests normal so far accept slightly low blood sugar and 1positive towards lyme 9but you need a few positive to go in that direction according to dr's.... so does this not make any sense? shouldn't blood work show some markers of disease especially if i have symptoms of this severity??? or are there somethings you can just never know!?? ...................so confused!!!!
symptoms vary greatly and im getting no def answers after switching dr's time and again seeing specialists and researching ,myself(which is relentless)
i have symptoms of:
Renaud's syndrome, alopecea, circulatory problems(painfull swollen vessels causing hives!broken blood vessels), skin problems(acne, wounds wont heal, blood vessels leaving marks, hives), hard lymph nodes in groin as well as swollen tender lymph nodes EVERYWHERE!, weird lump type feeling inside throat(went to ENT saw rawness w/ scope but no answers) itchyness(especially scalp), DRY SKIN, W/ PURPLE ROUGH PATCHES OVER KNUCKLES THAT SOMETIMES ULCERATE, shiny tight skin on hands, many oral changes (pale coloring in several areas, red sore like marks,white lines that come and go, inflammation under tongue and on the sides in the back of tongue and inside cheeks, bumpy lining of cheeks and where my gums connect to my bottom lip w/ pronounced veins, extremely dry mouth w/ white coating--not Candida's and its almost like my tongue and cheeks are bigger or my mouth is smaller bc i get teeth marks on my tongue and have been noticing the inside of my cheeks are in the way and i bite them more often) also: swollen pain full knees and ankles(tested neg forRA), GASTRITIS(after endoscopy), heavy periods w/ blood clots, swollen vulva and cervix(cervix has cysts that have grown rapidly)
Also ive noticed that the structures of my face have changed___ALL OF A SUDDEN !! i cant smile the way i used to my eyes are more buldging like and the creases in my face are diminishing!! its starting to cause depression and anxiety about leaving the house... please help
~~~tested neg for :LYME, RA, CELIAC, HIV, CLAMYDEA, GONORRHEA, STREP, O AND P(STOOLS), ALL BASIC CBC AND BLOOD WORK NORMAL!
I DO HAVE HYPOTHYROID AND IN 1995 I HAD A LARGE BENIGN TUMOR REMOVED FROM THE CONNECTIVE TISSUE IN MY CHEST
What long term effects can I expect from scoliosis and degenerative arthritis in my spine?
I'm 20, and have been diagnosed with scoliosis and also degenerative arthritis (either rheumatoid or osteo - still have to do blood work to find out). Being as young as I am, what can I expect the future to hold for me concerning these problems?
Also, my spine apparently curves the opposite way in which it would normally go in most people (I think to the left maybe? I'm not sure, just the other way than normal).
I am in shock right now! Need another opinion,to make a decision in regards to doctor and staff behavior:(:(.?
November 27, 2010 by admin
Filed under Scleroderma
For 12 yrs i have dealt with a beastly disabling autoimmune disease called "Mixed Collagen Vascular Disease" which means certain protiens {antibodies} Targetmybody.Ihavelupus,ra,sjogrens,raynauds,scleroderma,hashiomotos,polymyositis/I recently changed Rheumatologist.I was taken off methotrexate {she didnt think i had polymyositis} came back vaca my cpk count was up to 2,500 which means i had lots of muscle damage norm is 21.put on lge doses of pred & metho.I also have taken plaquenil for 12 yrs keeps lupus stable.
i called to reschedule appt.Was told i had to get blood work before refill on methotrex.,didnt hear from them called had to have rx faxed to them yearly eye exam for plaquenil to get refill.Called optometrist to fax them results.waited,in immense pain muscle cramps,never should you be taken off plaquenil or any meds that fast.fri spoke w nasty nurse,now have sores in mouth its tues.no Dr.NO MEDS,NO CALL.HELP!
Can you develop sickle cell anemia without being born with it?
September 23, 2010 by admin
Filed under Scleroderma
My mother who has had a string of supposed life threatening illnesses through out my life has now added another one to her list saying she now has "sickle cell anemia" and that she recently developed it from "having scleroderma". I was under the impression that sickle cell was only genetic. Can someone help me clear this up?
No no one in my entire family has it. She has had multiple blood work done and it's never come but but is claiming she just recently developed it.
can you have rheumatoid arthritis without it showing up in blood work?
I have rheumatoid arthritis like symptoms, but have a lot of blood work and nothing shows up. Is it possible it not be in the blood. It hasn't been a year yet, it started about June or July sometime around there. I am 14 if that means anything. I have also been diagnosed with fabry disease, both clinically and genetically.