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I have scleroderma, and would like to know how to rid the swelling in my hands and feet?

August 1, 2010 by admin  
Filed under Scleroderma

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I only have this severe swelling in my hands at night and or when I drink. I have to sleep with the house really cold in order for the swelling to stay at a minimum. When I drink, my hands get really swollen and hot. During the day I don't have much of any symptoms. A real drag to not be able to wear ring, as I can't wear my wedding rings, and I am a ring-o-holic.

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Comments

2 Comments on "I have scleroderma, and would like to know how to rid the swelling in my hands and feet?"

  1. dfx on Sun, 1st Aug 2010 5:35 pm 

    Hi Dana,

    I have a similar problem and swell up so bad at night that I sometimes cannot close my hands and my legs & thighs get bad too.

    I use pantyhose right now for my legs and it helps a lot and I do ankle pumps (move my foot up and down) – this helps push the edema out of the area. Any form of muscle movement/contraction will help push fluid out of the area. I also do Manual Lymphatic Drainage to remove fluid from the area. This is a link to a video. I have the DVD and it is helpful: http://www.realbodywork.com/lymph/lymph.htm

    Compression garments work better than pantyhose. You can wear them at night while you are sleeping or at any time. They make compression socks and gloves that decrease edema:

    This site looks great but I have not ordered from them yet. You might want to bookmark it.

    SOCKS: http://www.lymphedemaproducts.com/products/socks.html

    GLOVES: http://www.lymphedemaproducts.com/products/gloves.html

    I have not received a diagnosis yet – and wish I could find out why I am swelling so much. It really only happens at night and in the shower.

    Ask you doctor if it is okay to use compression garments to help. I really don’t think they are contraindicated for scleroderma. But MLD may be – I am not sure.

  2. someone's mom on Sun, 1st Aug 2010 5:35 pm 

    Can try cold water soaks for hands. Can also ask diagnosing doctor how best to relieve swelling.

    Alcohol is a vasodilator, and could potentially cause increased blood flow to the hands, which are already thickened.

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